Characterizing the diversity of the MS population in Canada
Summary:
- We need to better understand the diversity of the MS population in Canada.
- Understanding factors such as age, ethnicity, sex, gender, sexual orientation, comorbidity, income, education, and community characteristics are important because they can influence health outcomes.
- This study aims to examine various data sources from across Canada to address this knowledge gap in order to get a clear understanding of the diversity characteristics of the Canadian MS population.
Project Description:
The effects of MS vary from one person to another. Characteristics of the person with MS may affect the clinical course of their disease and long-term outcomes. These characteristics include factors such as sex, gender, age, sexual orientation, race, ethnicity, education, income, and the environment where a person lives. Currently, we do not have a good understanding of these diversity characteristics in people living with MS in Canada.
To address this knowledge gap, this study has three goals. First, the researchers will summarize what is and is not known about the diversity of people with MS in Canada. Second, they will identify resources that could be used to fill in knowledge about what is not known. Third, they will propose ways to address our gaps in knowledge going forward. They will work with a community advisory committee of people with MS to ensure that this work is meaningful and the information generated is used in the appropriate context.
Impact: A greater understanding of the diversity characteristics of people living with MS will support the development of approaches and policies that address health inequities.
Project Status: In progress