A Story of Faith, Resilience, and Community

“Cultural and religious beliefs can shape perceptions of chronic illnesses. In some cultures, there’s a stigma, leading to social isolation and a hesitation to seek help and support. Religion is often viewed as a source of strength, and there’s a belief that showing sadness weakens faith. I rely on my faith completely and I’m proud to call myself Somali and Muslim, but I also know I’m allowed to feel emotions. Being sad doesn’t take away from my faith; it’s just part of being human. 

When I was first diagnosed, the uncertainty was overwhelming, but my faith, family, friends, and medical team helped me through a rollercoaster of emotions. I was heartbroken and scared, overwhelmed by misconceptions about MS. When I took a moment to let the news sit with me and reflect, I realized that everything in life happens for a reason, and I had faith I was going to be okay no matter what. I realized my diagnosis could be an opportunity — a chance to break the silence and spread awareness in my community and beyond.

At the same time, I was also facing challenges with my youngest son, born in 2021 with a rare liver disease called Biliary Atresia. He needed a liver transplant at nine months old. Before his surgery, his skin turned yellow, and many people were terrified, thinking he was contagious. The stares and questions — 'What's wrong with your child? Is he okay?' — highlighted how little people understood about his illness. I realized the same stigma surrounded MS and many other conditions. 

As I processed my diagnosis, I decided to take action. I started a support group in my community to share resources and provide a safe space for those with chronic diseases. The group has been a lifeline, allowing us to share our struggles and victories. One of the most rewarding moments was meeting another individual living with MS who had been too scared to tell anyone. Seeing her find comfort in our group reaffirmed my belief in the power of community support.

Misconceptions about MS are common. When I was diagnosed, I knew very little about the disease and was terrified by the negative narratives I’d heard. I was scared of losing my ability to walk. It was overwhelming until I took the time to educate myself about MS. Learning about the disease and the advancements in treatment helped me regain some control over my situation. Progress in MS research is promising, and funding is vital for improving lives and finding a cure. The treatment I’m on now didn’t exist a few years ago, and it’s made a great difference in managing my symptoms. 

When I first opened up about living with MS, I confronted many misconceptions but reminded myself that these misconceptions stemmed from a lack of understanding, and it was up to me to help educate others. This was part of my motivation for starting Sisters Talk, a brand and organization that creates spaces where women, regardless of background, can feel heard, appreciated, and inspired. By hosting events and fostering open conversations, I’ve connected with many people, including those from my culture and others, who also live with MS. They’ve told me that because I was willing to come forward, they now feel comfortable doing the same.

Living with MS brings daily challenges, especially with mobility and speech. Some days are tough, but I've learned to give myself grace. I have good days and tough days. Sometimes my legs become weak, and I feel as though I’m dragging them. Sometimes I struggle with speech — I know the words in my head but have difficulty saying them. In the beginning, I struggled with daily tasks. I couldn’t climb stairs without feeling like I was walking on nails, and I needed help moving around the house. These changes were tough to accept. I often cried under my blanket, wondering if my mobility issues were permanent. Yet, even in my darkest moments, I found strength in my faith. It kept me grounded and gave me hope. I’ve learned to navigate these challenges by allowing myself time to rest and not push beyond my limits. I'm proud of overcoming fears like walking up stairs or driving, proving that MS does not define my capabilities. Each small victory, like climbing stairs using the handrail or driving short distances, is a testament to my resilience and determination.

One of the biggest lessons I’ve learned is the importance of being present. Before my diagnosis, I was always thinking ahead, planning my next steps. MS has forced me to slow down and appreciate each moment. I’ve learned to give myself grace and not be ashamed of my limitations. Difficult days will come, but they do not last forever. For anyone struggling with a neurological disease like MS, know that you’re not alone. Share your story when you’re ready and remember that your struggles do not define you — they make you stronger. By sharing my experiences, I hope to help others find the strength to navigate their own journey with MS.

Never in a million years did I think I’d be diagnosed with multiple sclerosis, but there isn’t a moment, good or bad, I would take back or regret. It’s the best part of me, and every obstacle will continue to make me more resilient and stronger. 

I envision a future filled with love, happiness, and joy. I refuse to let MS define me. It's just one part of who I am. I dream of a life where I can do everything I want to, and I hold on to the hope that one day, a cure will be found.”