Summary: A Canada-wide survey found that the MS community may be more diverse than previous research has shown. The findings highlight the importance of better representing diverse communities in MS research to ensure equitable access to care. Researchers can support this by building stronger community partnerships and involving people with diverse lived experiences in shaping future studies.
Background: We don’t have a good understanding of the diversity characteristics of people living with MS in Canada. A recent review showed that most studies only report participant age and biological sex, which only represents a minor aspect of diversity. Other factors like gender, sexual orientation, race, income, housing, and education may also affect health outcomes for people with MS.
Details: Researchers launched an anonymous Canada-wide survey online, from June 2025 to February 2026, to better understand the diversity characteristics of people with MS aged 18 years and older. The survey captured a range of diversity traits, home address, race and ethnicity, language, employment, gender and sex, religion, education, and other environmental factors. The survey was available in English and French.
Results: A total of 857 people across Canada completed the survey. The survey showed that people living with MS in Canada more closely represent Canada’s diverse population than previously reported:
Over one-third of participants lived in urban centres and one-quarter were from rural areas or small towns.
Most participants identified as White (93%), followed by Indigenous (4.9%) and Black (2.1%). About 10% of participants were born outside of Canada.
The most common languages spoken at home were English (94.7%) and French (7.4%).
Most participants were female at birth (83.5%) and a small proportion identified as 2SLGBTQI+ (11.9%).
Close to half of participants had a household income exceeding $100,000 and at least one university degree.
Impact: This study highlights the need for more inclusive research and healthcare delivery so all people living with MS have equal opportunity to receive the care they need. Researchers can help reach underrepresented communities by partnering with a broader range of community organizations and leaders, and involving people with MS with diverse lived experiences to help shape future research studies.
Reference: Article published in Multiple Sclerosis and Related Disorders Journal on June 27, 2026 – The many faces of the multiple sclerosis population in Canada.
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